Terms & Conditions

Last Updated: 20 April 2022

Company information

Sciensus Rare is part of the Sciensus Group of companies* and specialises in:

  • Clinical trials in the home
  • Medicines access
  • Bespoke supply chain management
  • Patient and family support
  • Outcome monitoring in the home

Acceptable use

You must not use our website in any way that causes, or may cause, damage to the website or impairment of the availability or accessibility of the website; or in any way which is unlawful, illegal, fraudulent or harmful, or in connection with any unlawful, illegal, fraudulent or harmful purpose or activity.

You must not use our website to copy, store, host, transmit, send, use, publish or distribute any material which consists of (or is linked to) any spyware, computer virus, Trojan horse, worm, keystroke logger, rootkit or other malicious computer software.

You must not conduct any systematic or automated data collection activities (including without limitation scraping, data mining, data extraction and data harvesting) on or in relation to our website without our express written consent.

You must not use our website to transmit or send unsolicited commercial communications.

You must not use our website for any purposes related to marketing without our express written consent.

Restricted access

We reserve the right to restrict access to other areas of our website, or indeed our whole website, at our discretion.

If we provide you with a user ID and password to enable you to access restricted areas of our website or other content or services, you must ensure that that user ID and password is kept confidential.

We may disable any user ID and password we provide to you at our sole discretion without notice.

Limited warranties

The information contained in our site has been published in good faith and with the aim of ensuring its accuracy, but in certain cases it may be incomplete, out of date or incorrect as at the time you view them and should be treated as being indicative only. If we become aware of any material inaccuracies in the information in our site, we will use reasonable efforts to correct the same.

To the maximum extent permitted by applicable law we exclude all representations, warranties and conditions relating to this website and the use of this website (including, without limitation, any warranties implied by law of satisfactory quality, fitness for purpose and/or the use of reasonable care and skill).

Limitations of liability

Nothing in these terms and conditions (or elsewhere on our website) will exclude or limit our liability for fraud, for death or personal injury caused by our negligence, or for any other liability which cannot be excluded or limited under applicable law.

Subject to this, our liability to you in relation to the use of our website or under or in connection with these terms and conditions, whether in contract, tort (including negligence) or otherwise, will be limited as follows:

(a) we will not be liable for any consequential, indirect or special loss or damage;

(b) we will not be liable for any loss of profit, income, revenue, anticipated savings, contracts, business, goodwill, reputation, data, or information;

(d) we will not be liable for any loss or damage arising out of any event or events beyond our reasonable control;

(e) our maximum liability in relation to any event or series of related events will be limited to €100.


You hereby indemnify us and undertake to keep us indemnified against any losses, damages, costs, liabilities and expenses (including without limitation legal expenses and any amounts paid by us to a third party in settlement of a claim or dispute on the advice of our legal advisers) incurred or suffered by us arising out of any breach by you of any provision of these terms and conditions, or arising out of any claim that you have breached any provision of these terms and conditions.

Breaches of these terms and conditions

Without prejudice to our other rights under these terms and conditions, if you breach these terms and conditions in any way, we may take such action as we deem appropriate to deal with the breach, including suspending your access to the website, prohibiting you from accessing the website, blocking computers using your IP address from accessing the website, contacting your internet service provider to request that they block your access to the website and/or bringing court proceedings against you.


We may revise these terms and conditions from time-to-time. Revised terms and conditions will apply to the use of our website from the date of the publication of the revised terms and conditions on our website. Please check this page regularly to ensure you are familiar with the current version.


We may transfer, sub-contract or otherwise deal with our rights and/or obligations under these terms and conditions without notifying you or obtaining your consent.

You may not transfer, sub-contract or otherwise deal with your rights and/or obligations under these terms and conditions.


If a provision of these terms and conditions is determined by any court or other competent authority to be unlawful and/or unenforceable, the other provisions will continue in effect. If any unlawful and/or unenforceable provision would be lawful or enforceable if part of it were deleted, that part will be deemed to be deleted, and the rest of the provision will continue in effect

Exclusion of third party rights

These terms and conditions are for the benefit of you and us and are not intended to benefit any third party or be enforceable by any third party. The exercise of our and your rights in relation to these terms and conditions is not subject to the consent of any third party.

Entire Agreement

These terms and conditions, together with our privacy policy, set out the entire agreement between you and us in relation to your use of our website. If you have entered into an agreement with us regarding your use of our website at an earlier date, that older agreement is replaced by this one, and no longer has any legal effect. In entering into these terms and conditions and our privacy policy with us, you agree that you have not relied, and are not now relying on any statement that we may have made to you that is not set out in writing in these terms and conditions or in our privacy policy, including any representation or warranty

Law and jurisdiction

These terms are governed by English law. Except as otherwise set out in this paragraph, any disputes related to these terms shall only be resolved in the English courts. You are taken to waive any objection to such jurisdiction or venue. We may bring court proceedings for an injunction or any similar relief in the courts of any jurisdiction to restrain or prevent any breach of these terms by you.

Cookies policy and privacy policy

Our cookies policy and our privacy policy are both incorporated into these terms. Our cookies policy is HERE and our privacy policy is HERE.

Any enquiries should be directed to: info-rare@sciensus.com.


These webpages contain general information only. Nothing in these webpages constitutes medical advice. You should consult a suitably qualified clinician on any specific medical problem or matter.

We make no warranties, representations or undertakings about: any of the content of this website (including, without limitation, any as to the quality, accuracy, completeness or fitness for any particular purpose of such content); or any content of any other website referred to or accessed by hypertext link through this web site (“third party site”).

We do not endorse or approve the content of any third party site, nor will we have any liability in connection with any of them (including, but not limited to, liability arising out of any allegation that the content of any third party site infringes any law or the rights of any person or entity).

Any enquiries should be directed to: info-rare@sciensus.com.

Copyright notice

The content of these pages is protected by copyright © Sciensus International B.V. and  copyright © Sciensus Pharma Services Limited. You may download and print extracts from this website and you can provide extracts to others – but you must not sell our content or republish it except as permitted below.

You are welcome to link to any of our pages, but do not do so in a way that is likely to give your users the mistaken impression that our content is yours or that our site endorses or is affiliated with yours. We reserve the right to withdraw linking permission without notice. Framing of this site or any part of it is not permitted without our express permission.

Our website contains links to websites operated by other persons. These links are provided for your convenience only. Other sites are not under our control and we are not responsible for their contents. The existence of links from our website to other sites is not an endorsement by us of the other websites or the products, services or information they contain. Any queries about other sites should be directed to their operators. If you decide to access other websites using the links we provide, you do so entirely at your own risk. If you download or otherwise access information, documents or other files or media from such other websites, you do so subject to the terms and conditions imposed by the persons who own or operate those websites.

Substantial copying of these pages in any form is prohibited. For example, you must seek our permission if you want to reproduce a blog from our site on your intranet or blog; but you are free to quote a single paragraph of text from a page of our site without asking as long as you acknowledge the source (a clearly-visible link to https://www.sciensusrare.com is sufficient attribution). Also, if you plan to copy short extracts from many of our pages, please seek our permission.

The “Sciensus” wordmark and logo are registered trademarks used with permission of the owner. Except where permitted by applicable law, these terms, or otherwise set out in our website, you may not use such trademarks under any circumstances without our prior written consent.

In addition, our website may include from time to time the names, logos, trademarks and/or other intellectual property of one or more third parties (for example, YouTube and its associated logo), which we use under licence in each case. Except as permitted by applicable law or these terms of use, you may not reproduce or use such names, logos, trademarks or other intellectual property for any purpose without the prior written permission of the relevant third party or parties.

For the avoidance of doubt, caching of this site is permitted by a service provider acting in the normal course of its business as provided for in the Electronic Commerce (EC Directive) Regulations 2002.

Sciensus Rare is part of the Sciensus group of companies. References to “we” or “us” in these terms include the Sciensus Group Companies, including Sciensus Pharma Services Limited (a company registered in England and Wales with Company registration number 02759609 and VAT number: 873342418) and Sciensus International B.V. (registered in the Netherlands under company number 34363537 and whose registered office is at Bijsterhuizen 3142, 6604LV Wijchen with a correspondence address at 107 Station Street, Burton Upon Trent DE14 1SZ, Staffordshire, United Kingdom).

Sciensus International B.V. is regulated by Ministerie van Volksgezondheid, Welzijn en Sport (The Dutch Ministry of Health, Welfare and Sport). SR operates under the following Wholesaler Licences: (1) Netherlands: NL WDA – 15224G; (2) UK: UK WDA – WDA (H) 15956. Sciensus International B.V. EIRO number: NL821441358B02.

https://www.sciensusrare.com is a website provided by Sciensus International B.V.

Further information about us is available at HERE.

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